Rare Liver Diseases

Description In this tenth ERN Rare-Liver webinar, held on 9 November 2021, Prof. McLin and Dr Gonzales provided an overview of the natural history of Congenital Portosystemic Shunts (CPSS) and presented the International Registry of Congenital Portosystemic Shunts (IRCPSS). A first case was presented by Prof. Savale about CPSS revealed by c...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. The ninth webinar entitled "Autoimmune sclerosing cholangitis & PSC: the spectrum of bile duct changes from childhood and through adult life", took place on 14 September 2021. Dr Henriette Ytting and Dr Marianne Hørby Jørgens...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this sixth webinar which took place on 13 July 2021, Professor Ansgar Lohse, Dr Eleonora De Martin and Dr Christina Weiler-Normann discussed about how to optimize standard therapy for autoimmune hepatitis, what are the criteria of acute sev...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this seventh webinar which took place on 11 May 2021, Prof. De Gottardi and Prof. Rautou discuss about the porto sinusoidal vascular disease (PSVD) and its management. Targeted Audience General practitioners Hepatologists Oncologists H...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this sixth webinar on PBC therapy, which took place on 13 April 2021, Professor Pietro Invernizzi moderated a discussion with Dr Marco Carbone, Professor Frederik Nevens and Dr Christophe Corpechot about the risk stratification and best the...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this first webinar on cyst infection, which took place on 10 November 2020, Prof. Joost Drenth and Dr Thijs Barten discuss the diagnosis and treatment of large hepatic cysts, cyst infections and other complications together with Dr Titus Wi...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this third webinar which took place on 12 January 2021, Dr Mathias Ruiz and Prof. Pavel Strnad discussed update on Alpha-1 Antitrypsin Deficiency in children and in adult, respectively. Targeted Audience General Practitioners Hepatologis...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this second webinar on neuromonitoring in pediatric acute liver failure (PALF), which took place on 15 December 2020, PD Dr Ekkehard Sturm is moderating a case study presented by Dr Johannes Hilberath and discussion on the contribution of n...

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this fourth webinar which took place on 9 February 2021, Dr Karl Heinz Weiss discussed the therapies and emerging treatments for Wilson Disease. Targeted Audience General practitioners Hepatologists Health care professionals

Description Discover the new educational ERN Rare-Liver webinar series launched in November 2020. In this fifth webinar which took place on 9 March 2021, Prof Calderaro, Prof Paradis and Dr Forner discuss about the cellular origin and the molecular alterations, the challenge for pathologist that represents a combined hepatocellular-cholang...