Discover the new educational ERN Rare-Liver webinar series launched in November 2020.

The ninth webinar entitled "Autoimmune sclerosing cholangitis & PSC: the spectrum of bile duct changes from childhood and through adult life", took place on 14 September 2021. Dr Henriette Ytting and Dr Marianne Hørby Jørgensen opened the webinar before Dr Patrick van Rheenen talked about the difference between the paediatric- and adult-onset of PSC. Finally, Prof. Mette Vesterhus presented data on juvenile PSC/ASC.

Targeted Audience

  • General Practitioners
  • Hepatologists
  • Health care professionals

Paediatric-onset Primary Sclerosing Cholangitis: Different from adult-onset?


Juvenile PSC/ASC from the adult side


Marianne Horby Jorgensen Marianne Hørby Jørgensen is a Senior Consultant and Paediatric hepatologist at Department of paediatric and adolescent medicine, Rigshospitalet, Copenhagen Denmark. She got a PhD within infant nutrition. Her clinical and research experience during the last 17 years is mainly focusing on transplantation, paediatric acute liver failure, and autoimmune liver disease in children and adolescent. She is the vice president of the Danish Paediatric association of Gastroenterology, Hepatology and Nutrition and she has recently become the paediatric pillar lead within ERN Rare Liver.
Henriette Ytting Henriette Ytting is Senior Consultant and hepatologist at the Department of Gastroenterology and Hepatology, Hvidovre University Hospital of Copenhagen, Denmark. Her PhD thesis focused on the innate immune system and during 10 years at the national transplant center, Rigshospitalet, her focus has been on autoimmune liver disease, acute liver failure and liver transplantation. At her present centre her primary responsibility area is autoimmune liver disease and she is chief of education. She is head of guideline working group of the National Society of Gastroenterology and Hepatology.


Patrick van Rheenen In the early years of his career Patrick van Rheenen worked as a tropical doctor in Zambia. During his training as a specialist in paediatrics in the Netherlands, he completed his PhD in the field of International Child Health, and was rewarded with a scholarship for a postgraduate training in Clinical Epidemiology. Since 2008 he has been working as a Pediatric Gastroenterologist with a particular interest in Inflammatory Bowel Disease and Primary Sclerosing Cholangitis. On a nationwide level he founded the IBD Working Group Kids with Crohn’s and Colitis (KiCC), which has members in all Dutch university medical centers and teaching hospitals. He is the past chair of the paediatricians of the European Crohn’s and Colitis Organisation (ECCO) and the lead author of the 2021 European guideline on the medical management of paediatric Crohn’s disease.
Mette Vesterhus Ass. Prof. Mette Vesterhus works as Senior Consulting Gastroenterologist at Haraldsplass Deaconess Hospital and University of Bergen in Bergen, Norway. She is President of the Norwegian Gastroenterology Society and National PI for the Norwegian National network for autoimmune liver diseases and the ScandPSC prospective biobank. Clinically and scientifically she focuses her work on autoimmune liver diseases and non-invasive assessment of liver fibrosis.
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