On April 19, 2023, the European Haemophilia Consortium marked World Liver Day with a discussion "On a pathway towards healthy ageing: Liver Health. Focus on care post-viral infection and post-gene therapy". This webinar was held as part of the World Haemophilia Week awareness campaign that traditionally takes place around World Haemophilia Day (April 17).
Liver disease remains one of the leading causes of death for people with rare bleeding disorders in Europe. This is due to the long-term damage caused by HCV infection due to the treatment contamination from the 1980s and 1990s. Despite the HCV cure, people who have lived with this infection for decades remain at a higher risk for non-alcoholic fatty liver disease and require further monitoring and care.
Gene therapy in haemophilia has been recently marketed in Europe, bringing patients fresh hope for a better quality of life. However, the treatment involves the infusion of large amounts of viral vectors targeting the liver to deliver the modified gene leaving questions on the long-term impact on liver health. During this event, we hear from medical experts and patients on patients' need towards healthy ageing and a healthy liver!
- Health care professionals
- Medical students
- Declan Noone, EHC President - moderator
- Prof Vincenzo La Mura (Italy) - speaker
- Brian O’Mahony (Ireland) - speaker
- Clive Smith (UK) - speaker