Description
In this ERN Rare-Liver webinar, held on 28 February 2023, Prof. Dr Christoph Schramm, Céline Angin and Marie-Cécile Gaillard discussed the advantages of ORPHAcodes and how to work with them in ERN RARE-LIVER centres for improving the treatment of patients. They also talked about the history of Orphanet and how the French National Rare Disease Registry (BNDMR) successfully implemented ORPHAcodes in France. The aim of all ERNs is to use ORPHAcodes in all centres to ensure a consistent nomenclature for rare diseases. ORPHAcodes offer a greater visibility for rare diseases in general.
Targeted Audience
- General practitioners
- Hepatologists
- Oncologists
- Health care professionals